Melissa and Jamie are heading to the Natinal Myastania Gravis Conference in St. Louis. They left early this morning. They are attending a dinner tonight for those who are in the medical field.
Melissa is a nurse practicioner in Kansas City. Jamie is a cardiac nurse at the Mayo Clinic in Rochester, MN.
They will be sharing with me each evening about their daily activities. I will update the blog with the information that they provide me. From what I understand, Thursday will be the biggest day of medical information. They will be attending different sessions so that they can obtain the most information possible. They will have the opportunity to talk to parents of kids like Zander.
I hope that this conference will give Jamie encouragement.
On a happy note, Zander is able to give "fives" now. He can do it with both hands. I can stick my hand out and he automatically knows what to do. Needless to say, I have been asking for a lot of "fives".
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What a great accomplishment for Zander to give 5's. I didn't know that Jamie was a nurse and in MN. I hope that they learn alot so that she can learn how to deal with this. Prayers for them both!
ReplyDeleteThank you for the prayers, Whitney. They learned quite a bit. However, it wasn't geared toward the form that Zander has because it is so rare. Melissa came home with a better understand.
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